Wilson as his neurologist. He discovered and considered POTS after 15 minutes of conversation. He is amazing. His schedule is typically tough to get in, in a timely manner but he is worth it. He also has bi-weekly POTS meetings with multiple patients that we have been asked to attend. If you do not find some place closer. I recommend Cleveland Clinic, the main campus in Cleveland, Ohio. I hope this helps. Best wishes! We went to the Mayo for my daughter this year The bad news is we had poor referrals and treatment recommendations.
Neurolgy dept missed it completely. The internal medicine dept figured it out. New research is showing a connection to vaccines…. As a nurse, just feel this needs to be looked into. Not only is he an excellent doctor, he also has monthly share appointments on POTS.
At any rate we live in NJ, also near Phila. If you are open to it I would really value talking and comparing notes — my email is [email protected]. Hi Kathy, I happened upon this website while trying to find a doctor for rare diseases. I hope you were able to find a good doctor for your daughter and her POTS. I was wondering if you were able to find a doctor in your area that has helped your daughter.
I was shocked when you said where you are from. I was born and lived in Monmouth County NJ until the age of 7. I moved to Athens Ga where I now reside. I desperately want to move back to South Jersey and plan to in the very near future.
I too was worried about finding new doctors once back home. I would love to know if you have had any luck with doctors in PA or NY.
Thank you so much, I do hope you were able to get help for your daughter, I know how frustrating it can be finding the right doctor. Wow Kathy! I am a nurse too and have been through almost the same thing.
I was hospitalized with a sinus infection which they would not treat with antibiotics because they claimed it was viral and gave me bronchodilators which made my undiagnosed POTS worse. I was discharged with cardiezem and had horrible side effects! Told I had panic attacks. I had to asked for my own tilt table test from a cardiologist and she was offended but it was positive! I went to Chicago but my insurance refused to pay after the doctors office said they would.
Bait n switch! Hi Kathy! I actually just had a recent episode of hypoxia. They put me on oxygen and my HR laying down in s. Fingernails blue and hands ice cold. Did they ever figure out what caused your daughter to desat like that? Was it continuous or a brief episode? For me it was like a shock through my body and the oxygen would dip and the heart rate would climb, but it would resolve quickly and spontaneously.
Hope you and your daughter are well and have found the treatment she deserves. Hi, I just came across your post. Your daughter is a lot like my son and his symptoms. Did your daughter ever get the help that she needed? If so what helped and where? Dr Wilson at Cleveland clinic neurology center. I was diagnosed today after 3 years and 15 doctors. This is a God send. Nicholas DePace has two offices in South Jersey. Somewhat nearby. I just saw your post.
Check The University of Pennsylvania in Philadelphia. I applied fot their program and living in north Jersey they connected me to The University of Pennsylvania to apply for the program. I was denied, but worth the effort to get into the UDN program. I am a teacher but have been unable to work for 12 months. My main issues are the dizziness, palpitations just rolling over in bed, my heart rates leaps 30 bpm.
I take florinef and Xanax. Have you found anything else that helps? Like you I feel lonely and isolated. I can look after my personal needs but I am unable to do normal activities like walking any distance, housework, cooking anything more than very basic meals and driving for more than minutes at a time. Having always been very fit I find it incredibly frustrating and limiting. I am in my late 50s with less stamina than most 80 year olds! So I continue to look for a doctor who can help.
H2 antihistamines have helped me a lot with my energy level. I take a Zantac in the morning and one in the evening. Search for Dr.
Lawrence Afrin. He has an excellent book called Never Bet Against Occam, which explains it. Best of luck to you. Sharon…I have Addisons and Hyper pots as well.. Me, too. Though I am older than you. Did you find any help? Has anyone had success with Clonidine? Hi Sharon! I too have Addisons. I recently had a crisis and was diagnosis with hyper pots.
With some reading, seems the two go together frequently. Hello I would love to chat with you, I find it very frustrating that nobody believes just how poorly this illness makes you feel? Hi, I am finally on track to a diagnosis of hyperpots after years of er visits and all the symptoms.
And the worry about when the next flare or relapse will hit. I happened upon a hyperpots support page and cried. That women experienced everything i was suffering with for years wondering why am I in the er again?
No doctors could figure out what it was. Follow up with your pc and monitor your bp…. Knowing is definitely a great but what now. Im wondering if you or anyone else was ever put on low dose high bp meds just during a relapse? Would love any helpful advice you can provide. My cardiologist is trying to find out where to send me next. I have M,E nd hyperpots we think. Has anything hped the adrenal surges and constant feeling of fear…given that i can not tolerate srugs unless tiny weeny doses.
I am in the process of seeking out specialists at the moment. Let me know how we can personal message each other. I have the same issues going on plus Ehlers Danlos, and so many other diagnoses. ME, all of its counterparts and Comorbidities that take away every finical, social, romantic, time consumption, energy available, required specialists, medications, being controlled by pain and fatigue and losing your self identity SUCKS.
Hello thank you for sharing your story. I hope you are doing well. I also was just diagnosed with pots a few weeks ago after many many years of being sick and many doctors saying I was depressed.
I have not been treated yet for it do to the pandemic and it took three month to get the first app. Could you tell me what your symptoms are.
Have you tried Midodrine it Fludrocortisone? I use both to keep my BP to a normal range. No sugar and walking frequently has given me back my energy. I am 59 and just learned I have it. I too was told simply to eat more salt, drink more water and wear compression stockings. Not enough help. Thankfully I met with an exercise physiologist about a reasonable for my age and fitness, etc workout routine. You will get inspired.
Exercises start slow and work up. As your strength builds, your POTS symptoms will both you less…. Hang in there. Susan; I know this post is from a few years back but I just wanted to let you know how much EFT could possibly help you in that area.
Please either google it or go to YouTube and look it up. Hope this helps you.. Hi, I am desperate now as I am practical bed ridden because of my skyrocketing bp and pulse upon standing. I have been having episodes for a few years that send me to the er a cpl times a year leaving everyone stumped as to why my pressure elevates upon standing. I am 52 and thought they were debilitating migraines until I discovered the high BP and heart rate,palpitations,fatigue, etc and researched for myself.
Anyone know who I can contact? My daughter has symptoms but not as severe so they should hopefully test you and then start some meds as needed. My daguhter is young so they were hesitant.
Treatment is not same if your BP rises I think, good luck. It may sound nuts, but please check out the Plant Paradox by Steven Gundry. I think it could really help. Food is an effective alternative to medicine. OMG you are my age now and I have the same issues.
Make an appt with Dr Wilson and you will first see the nurse practitioner Kyle Shannon. They took blood and will do more tests to determine which kind of POTS. I have been searching for 3 years and today I finally got an answer after 15 doctors. Good Luck and hope things are better for you. My mother is 67 years old. She has gastroparesis and has been told that she has dysautomia.
Her blood pressure is all over the place. It may be high when she wakes up but then bottom out with high pulse rate within a couple hours to only rise again later. She has fallen several times and almost fallen many many times. She has been to several doctors and most of them say there is nothingthey can do to help. Do POTS patients have both high and low blood pressure? Or is this only for dysautomnia patients she has not been diagnosed with POTS? It one crazy syndrome.
I have meds to control the high, but mornings are tough to get it up. I was on fludrocortosone but it made my pressure higher and I had two mini strokes. The drs. Weaned me off. I looked into things myself and found two herbal supplements to ease it up a little. This is a very real illness. No one should treat you like that! I passed out last week at school and just this past monday I havent took my medication in a year or so.
I drink water and eat salt but its like It still wont control it I missed 28 days of school last year from passing out and being so sick. We are about a month behind you. The latest is waking her at 3am to get all meds in her in hopes that she will have relieved symptoms in time for school.
Nothing has worked yet. Very frustrating to see this, we parents are helpless. Seems like we should be seeing improvement and we are questioning the diagnosis. I understand the pooling of the blood and the dizziness when you change your positions, but what causes the dizziness and headaches when you have been horizontal for the most part all night?
Hello David, I sincerely hope that your daughter has in fact improved since you wrote this post? I too have a 16 year old daughter diagnosed with POTS. I thought that I would share with you what appears to be working for us.
Our daughter became unwell with POTS after a series of serious sinus infections and surgery, Like your daughter she was so unwell that she did not get out of bed. This is when the POTS presented itself.
She was literally making herself worse by resting in bed. This article absolutely answered some questions for us. Our daughter had to get out of bed and had to get moving. We bought her prescribed compression stockings that definitely worked; without them the world starts to spin. She was loathe to wear them understandably but once she realized how much they helped her she started wearing them all the time.
She started bike riding only for 2 minutes on a supine bike and because of all her previous sinus infections we have had her having iv vitamin C and B12 injections. They are helping her to feel a lot better. She too has been unable to attend school this semester but as of this week she has been for 4 half days.
Nothing short of a miracle. Our daughter takes midodrine to elevate her blood pressure and various gut supplements to help with all the strong drugs she needed to take in the past.
I wish your daughter and you all the very best. I am 53 and the dizziness and head sensations hit 3 years ago. Good luck to your daughter. I pass out when lying down and was told its not common. I was told its autonomic nervous system disorder which just means the nervous system cannot control blood pressure or heart rate properly lying down or standing up. I take florinef I was dignosed with pots in I am a junior in high school.
There are some support groups on Facebook. There is no specialist where I live, but these groups have helped me. I just wanted to mention another reason for secondary pots or in the least there is a major correlation with POTS and elhers danlos syndrome. I have both conditions and through many years of researching I have found that there are many other people out there with both of these conditions and I wanted to mention it on this site so if anyone else has elhers danlos and POTS I wanted you to know your not alone.
Best of luck managing this silent sometimes very debilitating chronic condition! I have a 18 year old daughter who has been diagnosed with POTS. There is no blood test right now to aid in the diagnosis. It can be an incredibly frustrating process for patients," said Dr.
That's a significant finding. None of the 55 patients who participated in the study had another recognized autoimmune disorder. Fifty-two were female, with an average age of Researchers screened the patients' blood for autoantibodies against nine receptors.
A handful of patients showed elevated levels against all nine. But it was the prevalence of adrenergic A1 subtype receptor autoantibodies that make their findings so intriguing. We now might have the ability to diagnosis this, or at least have an inkling. Like other autoimmune disease, we can take a blood sample and detect if there are increased levels of autoantibodies present. According to our results, autoantibodies against this particular receptor should be present in about 90 percent of patients with POTS," said Dr.
Gunning and Grubb say much more research is needed. However, this study adds significantly to the evidence that POTS is an autoimmune disorder -- and it shows it may be possible to give physicians unfamiliar with the condition an easy way to test for it. What we used are the same kind of testing methods that would be used by regular hospitals. The reason I mention this is sometimes the interpreter of the tests can have an off day.
Keep believing in yourself and do not give up. Find a local cardiologist- some only take patients by recommendation, which in that case, either push for your doctor to send you to one, or find a new PCP. Thats what i had to do. My other physicians brushed me off while people I know suffering from this have told me to fight harder. I finally saw my neurologist again who claimed my potential for MS was actually fibro but provided no relief or suggestions on what to do.
I also saw a cardiologist I found on my own because of heart fluttering and my family history of heart problems. She took the time to put me on supplements to try and other medications to see if anything they suggest for fibro actually works. She has no recommended me to an electrophysiology cardiologist to find a diagnosis because my symptoms match another patient she has almost to a T that has been diagnosed with POTS.
The CDC has finally recently admitted after years that the number of people who get Lyme and co-infections annually is over , at least ten times the amount they had been certifying for many years. I was mis and un diagnosed for years, even in an area that is known to be hyper endemic! Best of luck to you. Bad answer! There are an estimated ,, people in the US living with POTS, making it a much more significant condition than previously understood. Lyme is a possibility but not a probability that should stop you from exploring other options.
Lyme generally cannot be diagnosed for the first month, and potentially requires several rounds of testing. If it is Lyme then you know, but if it is determined to not be Lyme, continue on with a cardiologist. It took us a while and a bunch of doctors 3 cardiologists, 2 neurologists, PCP, and a pulmonologist before coming up with a beginning point and then the cardiologist was an idiot.
And Lyme is an easy one to rule out via tests outlined by the CDC. The other side of the story is that my daughter had Lyme, was treated and later exhibited symptoms we thought were chronic Lyme.
Thanks for spreading the word about how rampant is! The CDC and the government in general are downplaying it. So frustrating! My daughter got Lyme disease at age 6 and a second case at age She is now 17 and completely debilitated. Had to withdraw from school. Rarely leaves her bed.
Blood pressure medicine gave her migraines. I think her brain misinterprets the physical sensations racing heart, palpitations, sweating as anxiety. You seem very knowledgeable. Do you have any suggestions for me? Do you think she needs more treatment for Lyme? Please answer! Thank you!!!! Jen, your daughter may be experiencing anxiety due to her symptoms. Before I was diagnosed with POTS, I dreaded fainting episodes which led to extreme anxiety because my first episode happened when I was driving on a freeway.
Finding the right meds to help your daughter function is very difficult. It took months for my cardiologist and neurologist to find the right meds to alleviate my symptoms. Sertraline has controlled my fainting episodes. I also take Zofran for occasional nausea. I hope your daughter finds relief.
I recommend a neurologist who understands small fiber neuropathy. Oaklander the leading researcher in the field. Apparently, POTS does not show up on regular cardio work ups because it is inadequate pre ventricular filling. A decrease in sweat glands associated with sfn shows dysautonimia, including POTS and other autonomic irregularities.
Unfortunately I just saw this but please go see a cardiologist. There you will find the answers you need. Hi there, check to see if there is an autonomic testing lab in your area. I just finally got testing results that show I have POTS, but have never fainted or been overly dizzy. I have almost all the other symptoms though. It has been a long road. I live in NH so I am able to travel to Boston. My pcp referred me to the Beth Israel Autonomic Clinic…long story, but the doctor there refused to see me after reviewing my records…said I should go to a headache clinic!
It took a couple months to get in, but I received the results today and now I can start to work to get relief! Good luck and I hope you find answers! I would see a Cardiologist. I have had many incidents to where my heart has stopped completely. So I would tell your current physician to send you to a cardiologist. Right here is the right web site for anybody who wishes to understand this topic.
You know so much its almost tough to argue with you not that I personally will need to…HaHa. You definitely put a fresh spin on a topic that has been discussed for years.
Excellent stuff, just wonderful! I was having several of the symptoms for several years and finally after yet another trip to hospital i was told to follow-up with a cardiologist he was awesome did several tests and I was diagnosed.
My life is much better now. Gentle yoga and mindfulness meditation will probably be supplied at a stage appropriate for all members. Absolutely wonderful to find this resource.
Thank you. My Sleep Neurologist who treats Narcolepsy on a few occasions noticed some Complaints and had me see the staff Autonomic Specialist. Its been caused by POTS! Ive found NO gluten for me, exercise, when I can.. Its as hard as Narcolepsy at times if not worse, but is what it is. Look forward to more on this great site. Me too. I found out I have a parasite Blastocystis.
I wish hospital would take me in and help me but they just send me home. It means he will collapse in a cataplexy attack and stay down because of the POTS.
Insomnia with Narcloepsy is a real kicker. I use Adderall XR. Caffeine also helps me tremendously. For others, caffeine makes it worse. I advise everyone to do all you can to find your underlying reason s for your POTS.
Different causes have different treatment options, particularly medications. It is a syndrome with very different disease mechanisms that can lead to the same cluster of symptoms. I would really like to find the way nderlying cause and other treatment options.
I will travel anywhere! Please let me know… thank you! Cleveland Clinic and Vanderbilt are the ideal places to go. They have the latest and greatest diagnostic tools. Cleveland Clinic you can refer yourself. Cleveland Clinic can often maintain a long distance patient doctor relationship as well as work with doctors in your town as I was an out of town patient who benefit from that relationship.
Most importantly, I was treated like a guest in a upscale resort. They impressed me with holistic approach to management. On the other hand, Vanderbilt has been studying POTS for decades and have a comprehensive research guided approach to collecting information that will help us all understand the intricacies of the disease.
You will need a referral and may have to wait. My desire is to go there and to add to the body of research. Michelle I see Dr. Phillip Low at the Rochester Mayo Clinic. Low diagnosed me with the hyperadrenergic form of POTS before all the tests were even back! After my diagnosis I received a personalized diet, medication and lifestyle change regimen! Also, their cardiac rehab department gave my husband and I a presentation on POTS before creating a personalized workout regimen for me!
I forgot to mention Dr. We speak via a patient portal and he responds within 48hrs, usually 24! He adjusts all my meds in concert with my PCP! My wife has been suffering from most, if not all, of the symptoms of POTS for more than 4 years. Onset of symptoms followed closely a failed rotator cuff repair surgery. She is essentially house-bound because of the heat issues.
How prevalent are facial flushing and heat intolerance in POTS? Heat intolerance is quite common. I also get flushed, particularly in heat, and one side of my face is significantly worse than the other.
I would have to assume it has something to do with the autonomic nervous system and how it affects the blood vessels. The reason for the heat sensitivity is that heat dilates blood vessels, making the blood flow down to the legs more quickly and easily. The heat intolerance could suggest that she has problems with blood flow like those in POTS rather than just drops in blood pressure that a orthostatic hypotension diagnosis would suggest.
By a different doctor than the one who ordered the tilt-table. Also, I just have sporadic blood pressure in general. Hi Patrick i was reading about your wife and how she got POTS after surgery i know this is an old post. I have POTS and believe i contacted this syndrome after anestisia. I had abdominal surgery 6 months ago and had horrible symptoms after surgery: tachycardia, fatigued, hypoglycemia, etc..
However i was diagnosed with POTS, im beginning to think that the anesthesia created all these symptoms from cellular damage. Hope you get this message. I have horrible heat and cool if sensitivity. I am like a thermometer.
I hate being so sensitive to temp changes. It was 85 degrees and I had to go sit in the car with the AC on and suck down water. I was miserable. I have so many of these symptoms and just heard about POTS in the last week. A lightbulb went on. I see my PCP at the end of the month. Unfortunately, I have had an intractable migraine for over 10 months straight.
I just thought these symptoms were part of that. Do u all feel like this one word pretty much sums up how you feel with this condition— DOOM? Like literally DOOM is going to swallow your entire existence? To sum, would u rather have perminent food poisoning to a spectacular degree even prolonged lifetime labor would feel better that what your feeling now???
I know that feeling oh too well! There were no words when he left the room, just went about his way saving other people in the ER. Oh dear god. He needs to be on a medication called Midodrine its not great for the IBS but will stop him from collapsing. Trust me please. Dennis Bradbury — Have you thought about getting a service dog?
Maybe a service dog could help your son? One drug mentioned is Clonidine, a commonly used blood pressure medication, but also is used for suppressing adrenaline production. After taking a combination of these two pills, I find that I feel more mentally focused, more energized, and can now expect to accomplish more in the next few hours.
The combination of these two supplements are also very valuable in reducing the effects of heat or humidity on the person who takes them. You need to find a cardiologist or electrocardiologist at a major teaching hospital. My daughter went through this for 2 years before being diagnosed.
Get your PCP to refer your son for an appointment at a teaching hospital in your state that works with young adults not senior citizens. In the meantime encourage him to eat salty foods, plenty of water my daughter drinks 60 ozs per day and consider medication from cardiologist to help regulate and get his body under control. If he is anything like my daughter he is very weak and tired with not much appetite.
I bought protein smoothies to help get some nutrition into her. It was a slow road as she had spiralled so low and was collapsing 2 and 3 times a day sometimes in the beginning. She is now much better and has adopted a gluten free diet which helps, she adds Propel to her water to add electolytes when she knows that she is getting tired or drinks a gatorade.
Maintenance to stay healthy is constant but getting out of the fog is so hard. I feel your pain. Once you can start controlling the amount of times he collapses a day and can get to a day he does not, try to encourage him to start walking as exercise will help.
The good news is that my daughter holds down a job and better understands how to maintain her Potts even though it still sneaks up on her. Her hands start shaking and rising up. When she comes to, she feels nausea, vomits and has a bad headache. Doctor suggested she see a neurologist for the hands shaking. I was very athletic my whole life! I have periods of feeling great to feel like I could die! I get so tired! Worse, I got a stomach virus that had me sitting on the throne while throwing up in a trash basket!
At the same time for 10 hrs trying to stay consence! The pain was UNbelievable! I have yet to recover! Your life has a total change and you fight everyday to some kind of normal! I read others have no one! Prayer gets me through the really bad days! He has been diagnosed with hypothyroidism, spent 2 months in the hospital for a stomach infection that required 2 years of antibodic treatment.
Since then his health has been bad. He suffers from anxiety, depression, sleep problems and just about every symptoms mentioned having to do with pots syndrome. Last year he was diagnosed with addisons disease and started treatment but still suffers from many dipiltating symptoms. My continued research into finding him relief and quality of life has brought me here. I will take this info back to his dr and insist on a referral to a cardiologist.
I will never give up on him! Thank you for this valuable information. Have you monitored his aldosterone? I have very low or not measurable levels of aldosterone and have to take Florinef to compensate. I am completely non-functional and fainting without it. Florinef helps your body retain the fluids and salt it needs to keep blood volume up high enough.
Increasing blood volume makes a world of difference for me and other POTS sufferers. I have been suffering from pots for many years. I also get this little pots rashes,and modelling, which are little marks on my body.
I have been diognosed with pots at age My allergist did a skin prick test, yet to be POTS! I suddenly felt really bad again, so told him I having another pots episode, and my allergist suddenly listened to my heart, and he could feel and hear it pounding.
I went home and had some salt and water. With the flushing, rashes, marks on your body you may want to pursue looking into Mast Cell Activation Syndrome.
Check out Dr. Be careful as if testing samples are not handled properly by the lab for example 24 hr urine test MUST be kept cold results will come back saying no issue when in fact there may be.
I have most of the symptoms described. My history is regrowth of meningioma operated on, then started to have the postural hypotension. The tumour went roughly from t5 to t9. Then I had a fracture at t6. Really since the fracture life has got worse. As someone told me the other day you have to laugh, when I told him about a diagnosis possibility of being histrionic. Actually, feel these days as being quite lost, having always been so independent.
A treatment my doctor recommended that has helped with my POTS is drinking Sole Himalayan salt solution you can google how to make it in the morning. It has helped ease my dizziness upon standing or changing positions. Just wanted to share! Neuropathy cannot be a cause for POTS.
Neuropathy is nerve damage. Furthermore, abdominal pain is the most common symptom of acute porphyria a genetic metabolic condition that can cause postural hypotension which is a symptom of disease, not a disease in itself. It took me over 15 years to get a correct diagnosis. I have had every symptom except tremors.
As I age, the symptoms are getting more intense. My best to everyone who suffers from this disease. I have had POTS since giving birth to my twins.
Over the last 11 years things have gotten worse to the point where i have been passing out a lot more lately. It is a very scary thing but i am really trying to stick with the diet and exercise program my neurologist has given me. Not a fun diagnosis. Im 17 and was diagnosed with POTS a little over a year ago. If started with me just thinking I was sick and eventually the sickness never went away.
I was getting so weak and unable to eat that I would cry for hours because I felt like I was dieing. Sounds like an exaggeration but I could not begin to describe how badly I felt. It took me 2 hospital visits to be diagnosed and another trip after because I was still very ill and was not on medication yet.
I have anxiety and depression which my cardiologist has told me can worsen with a person who has POTS. I was unable to go to school for a long time and eventually started doing half days. I hated this idea and really pushed myself to go to school.
I learned that laying down for long periods of time makes my POTS worse. So sitting at home all day was making me feel worse. I eventually made it through full days of school. I passed out while running and my first lacrosse practice back and was able to learn when I need to stop while exercising. Keeping myself to a set routine and pushing myself to go to school and practice makes me feel better.
Although there are days where I am too exhausted. I take midodrine and fludrocortisone for my POTS along with salt tablets. I found that even if I was very hydrated that I needed electrolytes everyday. They have salt, electrolytes and vitamins. I try to have one in my water everyday to keep myself feeling good.
Caroline I was hoping I could reach out to you for some advise for my 18yr old daughter. She has been passing out gets dizzy all the time and has every symptom that comes along with POTs.
She did stop going to school and is now home schooled. I was hoping maybe the two of you could connect and see if you could give each other some teen advise as to what helps you get thru you day, or maybe just be support for each other. Has anyone looked into spinal misalignment or spinal disc dysfunction?
Just curious if anyone looked into spinal disc issues? My daughter has severe scoliosis. She is 22 and has had POTS since she was It has become more severe as the years have gone by. My daughter has POTS and lordosis. We know 2 others with POTS, one has lordosis and the other scoliosis. Could physically see chest pounding this has been happening my entire life, especially at night after drinking red wine or sometimes for no apparent reason.
Had been laying in hospital bed for six hours until I finally got to see a doctor. Told me to stand up and heart rate jumped to monitor alarms went off.
He came back, did an EKG and an emergency CT scan including contrast with suspicion of possible pulmonary embolism. Tests came back negative. I was mostly unconscious on a heart monitor in the cardiac unit of wyckoff medical for another day after that.
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